Mother shares early signs of daughter's rare childhood dementia - raising funds for special memories
A mother noticed her daughter's 'childhood Alzheimer's' when she stopped talking at age two. Diagnosed with Sanfilippo Syndrome, the five-year-old's condition is deteriorating. The family is fundraising for Disneyland trip and essential equipment.
A heartbroken mother discovered her daughter's 'childhood Alzheimer's' when she stopped talking at age two. Esmay Ford, five, from Crediton, Devon, was diagnosed with Sanfilippo Syndrome (MPS IIIA) on May 15. This rare genetic form of childhood dementia causes mental deterioration, memory loss, and personality changes.
Esmay's family noticed her silence and frequent illnesses in 2021. Initially misdiagnosed, she was later diagnosed with MPS IIIA, also known as 'childhood Alzheimer's'. This disorder leads to cognitive decline, with a life expectancy of 10 to 18 years.
Now, Esmay needs constant care, unable to walk or recognize her family. Her family aims to create lasting memories and raise funds for Disneyland and essential equipment. They cherish the time they have with her.
To support Esmay and her family, visit the GoFundMe page.
According to the source: Daily Mail.
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